How We Survive Long Hospital Stays
Later this week will be the beginning of another prolonged hospital stay. Our sweet girl is undergoing an epilepsy surgery after many failed attempts to manage her seizures with medication.
This procedure gives her an 80% chance at seizure freedom but also comes with a cost. She will be left with increased left sided weakness and visual deficits. We will be in the hospital for 4-6 weeks going through intense rehabilitation to help her regain function before coming home.
Unlike prior long hospital stays this one is planned so I’ve been thinking a lot about what we can do to make it easier on all of us without getting too overwhelmed!
Some of the things I originally planned on doing have been nixed because they just weren’t that important to worry about. Our awesome family and friends are stepping up to help ease some of the burden at home while my husband and I split time at the hospital with baby girl.
Speaking of splitting time at the hospital, this is by far the most important thing I’ve learned over the past 3 years. Momma needs to fill her cup too and that means taking a break from the hospital scene to recharge at home and spend time with my other two kiddos.
Along these same lines, I always make sure to pack my journal, a good book, and earbuds to listen to my favorite podcasts and music. How I spend my day at the hospital is important too. I make it a priority to go down and grab 3 meals a day, step outside for fresh air, and most importantly shower. The nurses and aides are always willing to spend time with a cute little one while you go take care of yourself.
Being at the hospital is not fun by any means for you or your child. You have to remember to take care of yourself and if your child is able, make sure you have toys, books, their tablet, and say yes to things like art therapy and music therapy. This helps break up the monotony of the day for them as well.
Finally, remember that you are not alone. Lean into your support systems. Remember the bigger picture and most of all remember the one who loved you first, who loves you most, and will fight for us the most. Our Heavenly Father.
“Thanks be to God, who in Christ always leads us in triumphal procession, and through us spreads the fragrance of the knowledge of him everywhere.” (2 Corinthians 2:14)
”So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.” (Isaiah 41:10)